Facioscapulohumeral Dystrophy, or FSHD, is a degenerative muscular disease for which there is no treatment or cure.

Mission Statement

“Pacific Northwest Friends of FSH Research is a 501 (c) (3) organization working to impact the lives of people affected by FSH Muscular Dystrophy by financially supporting FSHD research in search of a treatment or cure.”

Purpose Statements

 To encourage, promote and fund increased scientific and clinical research of Facioscapulohumeral Dystrophy, or FSHD.

To conduct fund raising efforts and solicit grants and contributions from individuals, private foundations and others, in order to sponsor research to help advance the study and understanding of FSHD, with the goal of identifying treatments and ultimately, a cure for the disease.

 To disseminate information about FSHD and encourage additional public support for FSHD research by raising public awareness of the need for more research funding.