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Spread the word about our organization and our cause;
encourage your friends and neighbors to support us and to invest
in furthering FSHD research so that we can work towards a cure!
In addition to word of mouth, writing can be a powerful tool to
get people involved.
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Mark your calendar for the
auction on January 26, 2008,
and tell others about it |
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Write to your
Congressman/Senators and ask for increased FSH funding
from the NIH |
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Write to the Muscular
Dystrophy Association and ask for greater equity in
their research allocations - there are more than
25,000 people with FSHD that deserve to have efforts
made on their behalf to encourage & support
research. |
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Share the story of how you
live with FSHD. |
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