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Research for Facioscapulahumeral Dystrophy is seriously underfunded.  You can help generate interest to increase NIH funding for FSHD by writing to those in power to increase NIH spending.  Send this form letter to the addresses below today!

 

Muscular Dystrophy Association

 

Address:

3300 E. Sunrise Dr.
Tucson, Arizona 85718

Phone:

520-529-5454

Email Address:

mda@mdausa.org

Ronald Schenkenberger
Senior VP Research & Health Care Services

Address:

MDA
3300 E. Sunrise Dr.
Tucson, Arizona 85718

Phone:

520-529-5454

Email Address:

rschenkenberger@mdausa.org

 

National Institute of Health


John D. Porter, Ph.D.

Executive Secretary, Muscular Dystrophy Coordinating Committee (MDCC)
Program Director, Neuromuscular Disease
Neurogenetics Cluster and the NINDS Technology Development Program
National Institutes of Neurological Disorders and Stroke

Address:

6001 ExecutiveBlvd, NINDS/NSC 2142
Bethesda, MD  20892

Courier Delivers:

Rockville, MD  20852

Phone:

301-496-5745

Fax:

301-402-1501

Email Address:

porterjo@ninds.nih.gov

 

Glen H. Nuckolls, Ph.D.
Director, Muscle Disorders and Therapies Program
Musculoskeletal Diseases Branch, Extramural Programs
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health, DHHS
 

Address:

One Democracy Plaza, Suite 800

6701 Democracy Blvd, MSC4872
Bethesda, MD 20892-4872

Courier Delivers:

Bethesda, MD 20817

Phone:

301-594-4974

Email Address:

nuckollg@mail.nih.gov