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While visiting
Washington D.C. in May, I had
the opportunity to meet with one of Senator Maria Cantwell’s
health legislative assistants. In talking about FSHD funding by
the National Institute of Health and the need for increased
funding, it was clear that the group that makes noise will get
notice. The legislative assistant mentioned how other groups
receive notice due to the number of calls and visits that
advocate for their causes.
The message that
numbers make the difference
was restated by the other Senate and House of
Representative offices with which I have recently had meetings.
The Legislative assistants at the offices of Senator Murray’s
and Representative Jay Inslee pointed out that e-mails, letters
and phone calls do help to bring issues to the attention of our
officials.
You can make a difference,
just by writing a quick e-mail or making a phone call telling
your representative that you want the N.I.H. to provide more
funding for FSH research! Visit your representative’s website &
click their link to send a message now!
-Terry Collela
Research
for Facioscapulahumeral
Dystrophy is seriously underfunded. You can help
generate interest to increase NIH funding for FSHD by writing to the
politicians below. Send
this form letter today!
Edward
M. Kennedy
Christopher J.
Dodd
Tom
Harkin
Barbara
A. Mikulski
Jeff
Bingaman
Patty
Murray
Jack
Reed
Hillary
Rodham Clinton
Barack
Obama
Sherrod
Brown
Independent:
Bernie Sanders
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DC Address: |
The Honorable Bernie Sanders
United States Senate
332 Dirksen Senate Office Building
Washington, D.C. 20510-4503 |
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DC Phone: |
202-224-5141 |
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DC Fax: |
202-228-0776 |
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Email Address: |
None Currently Available |
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WWW Homepage: |
http://sanders.senate.gov/ |
REPUBLICANS
by Rank:
Michael
Enzi
Judd Gregg
Lamar Alexander
Richard Burr
Johnny Isakson
Lisa Murkowski
Orrin G. Hatch
Pat Roberts
Wayne Allard
Tom Coburn
Jim McDermott
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DC Address: |
US
Representative, 7th District
1035 Longworth HOB,
Washington DC, 20515-4707 |
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Mailing Address: |
1809 7th Ave, Ste 1212
Seattle WA
98101-1399 |
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DC Phone: |
(202) 225-3106 |
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Local Phone: |
(206) 553-7170 |
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Local
Fax: |
(206) 553-7175 |
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Staff Assistant: |
David Loud |
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Email Address: |
david.loud@mail.house.gov |
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WWW Homepage: |
www.house.gov/mcdermott |
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