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While visiting Washington D.C. in May, I had the opportunity to meet with one of Senator Maria Cantwell’s health legislative assistants. In talking about FSHD funding by the National Institute of Health and the need for increased funding, it was clear that the group that makes noise will get notice. The legislative assistant mentioned how other groups receive notice due to the number of calls and visits that advocate for their causes.

The message that numbers make the difference was restated by the other Senate and House of Representative offices with which I have recently had meetings. The Legislative assistants at the offices of Senator Murray’s and Representative Jay Inslee pointed out that e-mails, letters and phone calls do help to bring issues to the attention of our officials.

You can make a difference, just by writing a quick e-mail or making a phone call telling your representative that you want the N.I.H. to provide more funding for FSH research! Visit your representative’s website & click their link to send a message now!

-Terry Collela

Research for Facioscapulahumeral Dystrophy is seriously underfunded. You can help generate interest to increase NIH funding for FSHD by writing to the politicians below. Send this form letter today!

DEMOCRATS by Rank

Edward M. Kennedy

DC Address:	The Honorable Edward M. Kennedy United States Senate 317 Russell Senate Office Building Washington, D.C. 20510-2101
DC Phone:	202-224-4543
DC Fax:	202-224-2417
Email Address:	http://kennedy.senate.gov/senator/contact.cfm
WWW Homepage:	http://kennedy.senate.gov/

Christopher J. Dodd

DC Address:	The Honorable Christopher J. Dodd United States Senate 448 Russell Senate Office Building Washington, D.C. 20510-0702
DC Phone:	202-224-2823
DC Fax:	202-224-1083
Email Address:	http://dodd.senate.gov/index.php?q=node/3128&cat=Opinion
WWW Homepage:	http://dodd.senate.gov/

Tom Harkin

DC Address:	The Honorable Tom Harkin United States Senate 731 Hart Senate Office Building Washington, D.C. 20510-1502
DC Phone:	202-224-3254
DC Fax:	202-224-9369
Email Address:	http://harkin.senate.gov/contact/contact.cfm
WWW Homepage:	http://harkin.senate.gov/

Barbara A. Mikulski

DC Address:	The Honorable Barbara A. Mikulski United States Senate 503 Hart Senate Office Building Washington, D.C. 20510-2002
DC Phone:	202-224-4654
DC Fax:	202-224-8858
Email Address:	http://mikulski.senate.gov/mailform.html
WWW Homepage:	http://mikulski.senate.gov/

Jeff Bingaman

DC Address:	The Honorable Jeff Bingaman United States Senate 703 Hart Senate Office Building Washington, D.C. 20510-3102
DC Phone:	202-224-5521
DC Fax:	202-224-2852
Email Address:	senator_bingaman@bingaman.senate.gov
WWW Homepage:	http://bingaman.senate.gov/

Patty Murray

DC Address:	The Honorable Patty Murray United States Senate 173 Russell Senate Office Building Washington, D.C. 20510-4701
DC Phone:	202-224-2621
DC Fax:	202-224-0238
Email Address:	http://murray.senate.gov/email/index.cfm
WWW Homepage:	http://murray.senate.gov/

Jack Reed

DC Address:	The Honorable Jack Reed United States Senate 728 Hart Senate Office Building Washington, D.C. 20510-3902
DC Phone:	202-224-4642
DC Fax:	202-224-4680
Email Address:	http://reed.senate.gov/contact/contact-share.cfm
WWW Homepage:	http://reed.senate.gov/

Hillary Rodham Clinton

DC Address:	The Honorable Hillary Rodham Clinton United States Senate 476 Russell Senate Office Building Washington, D.C. 20510-3203
DC Phone:	202-224-4451
DC Fax:	202-228-0282
Email Address:	http://clinton.senate.gov/contact/webform.cfm
WWW Homepage:	http://clinton.senate.gov/

Barack Obama

DC Address:	The Honorable Barack Obama United States Senate 713 Hart Senate Office Building Washington, D.C. 20510-1305
DC Phone:	202-224-2854
DC Fax:	202-228-4260
Email Address:	http://obama.senate.gov/contact/
WWW Homepage:	http://obama.senate.gov/

Sherrod Brown

DC Address:	The Honorable Sherrod Brown United States Senate 455 Russell Senate Office Building Washington, D.C. 20510-3504
DC Phone:	202-224-2315
DC Fax:	202-228-6321
Email Address:	http://brown.senate.gov/contact.cfm
WWW Homepage:	http://brown.senate.gov/

Independent:

Bernie Sanders

DC Address:	The Honorable Bernie Sanders United States Senate 332 Dirksen Senate Office Building Washington, D.C. 20510-4503
DC Phone:	202-224-5141
DC Fax:	202-228-0776
Email Address:	None Currently Available
WWW Homepage:	http://sanders.senate.gov/

REPUBLICANS by Rank:

Michael Enzi

DC Address:	The Honorable Michael Enzi United States Senate 379A Russell Senate Office Building Washington, D.C. 20510-5003
DC Phone:	202-224-3424
DC Fax:	202-228-0359
Email Address:	http://enzi.senate.gov/public/index.cfm? FuseAction=ContactInformation.EmailSenatorEnzi
WWW Homepage:	http://enzi.senate.gov/

Judd Gregg

DC Address:	The Honorable Judd Gregg United States Senate 393 Russell Senate Office Building Washington, D.C. 20510-2903
DC Phone:	202-224-3324
DC Fax:	202-224-4952
Email Address:	http://gregg.senate.gov/sitepages/contact.cfm
WWW Homepage:	http://gregg.senate.gov/

Lamar Alexander

DC Address:	The Honorable Lamar Alexander United States Senate 455 Dirksen Senate Office Building Washington, D.C. 20510-4204
DC Phone:	202-224-4944
DC Fax:	202-228-3398
Email Address:	http://alexander.senate.gov/index.cfm? FuseAction=Contact.Home
WWW Homepage:	http://alexander.senate.gov/

Richard Burr

DC Address:	The Honorable Richard Burr United States Senate 217 Russell Senate Office Building Washington, D.C. 20510-3306
DC Phone:	202-224-3154
DC Fax:	202-228-2981
Email Address:	http://burr.senate.gov/index.cfm?FuseAction=Contact.Home
WWW Homepage:	http://burr.senate.gov/

Johnny Isakson

DC Address:	The Honorable Johnny Isakson United States Senate 120 Russell Senate Office Building Washington, D.C. 20510-1004
DC Phone:	202-224-3643
DC Fax:	202-228-0724
Email Address:	http://isakson.senate.gov/contact.cfm
WWW Homepage:	http://isakson.senate.gov/

Lisa Murkowski

DC Address:	The Honorable Lisa Murkowski United States Senate 709 Hart Senate Office Building Washington, D.C. 20510-0202
DC Phone:	202-224-6665
DC Fax:	202-224-5301
Email Address:	http://murkowski.senate.gov/contact.cfm
WWW Homepage:	http://murkowski.senate.gov/

Orrin G. Hatch

DC Address:	The Honorable Orrin G. Hatch United States Senate 104 Hart Senate Office Building Washington, D.C. 20510-4402
DC Phone:	202-224-5251
DC Fax:	202-224-6331
Email Address:	http://hatch.senate.gov/index.cfm?FuseAction=Offices.Contact
WWW Homepage:	http://hatch.senate.gov/

Pat Roberts

DC Address:	The Honorable Pat Roberts United States Senate 109 Hart Senate Office Building Washington, D.C. 20510-1605
DC Phone:	202-224-4774
DC Fax:	202-224-3514
Email Address:	http://roberts.senate.gov/public/ index.cfm? FuseAction=ContactInformation.EmailPat
WWW Homepage:	http://roberts.senate.gov/

Wayne Allard

DC Address:	The Honorable Wayne Allard United States Senate 521 Dirksen Senate Office Building Washington, D.C. 20510-0605
DC Phone:	202-224-5941
DC Fax:	202-224-6471
Email Address:	http://allard.senate.gov/public/ index.cfm? FuseAction=Contact.Home
WWW Homepage:	http://allard.senate.gov/

Tom Coburn

DC Address:	The Honorable Tom Coburn United States Senate 172 Russell Senate Office Building Washington, D.C. 20510-3603
DC Phone:	202-224-5754
DC Fax:	202-224-6008
Email Address:	http://coburn.senate.gov/public/ index.cfm? FuseAction=ContactSenatorCoburn.Home
WWW Homepage:	http://coburn.senate.gov/public/

Jim McDermott

DC Address:	US Representative, 7th District 1035 Longworth HOB, Washington DC, 20515-4707
Mailing Address:	1809 7th Ave, Ste 1212 Seattle WA 98101-1399
DC Phone:	(202) 225-3106
Local Phone:	(206) 553-7170
Local Fax:	(206) 553-7175
Staff Assistant:	David Loud
Email Address:	david.loud@mail.house.gov
WWW Homepage:	www.house.gov/mcdermott

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