Research Opportunity

The University of Washington is seeking individuals to participate in a research study aimed at identifying biomarkers of Facioscapulohumeral Dystrophy (FSHD). This study will assess and compare muscle and blood biomarkers in individuals both with and without FSHD. The study is enrolling participants under the direction of Dr. Leo Wang, MD, Neurology Assistant Professor.

Blood and muscle tissue samples will be used to better understand FSHD and identify biomarkers of the disease. We are hopeful this research will provide information for development of therapies in the future.

All participants must be 18 to 75 years of age and NOT taking any medication for anticoagulation (blood thinners). The study requires one visit lasting about 2.5 hours to the University of Washington Medical Center for the collection of blood and muscle biopsy samples. Participants will be given a stipend of $200.

If you are interested and/or would like additional information, please call Susan, the study coordinator at 206-685-2028 or email at

This study is sponsored by Friends of FSH Research.

See study pdfIcon Consent form.