
Apr 6, 2023
Final update by Dr. Ozes of Altay Therapeutics.

Mar 23, 2023
FlexFund grant on support for continued development of low-cost FSHD diagnostic test.

Feb 5, 2023
This large study will be a big achievement in the FSHD community, a reality that has been made possible by the support from Friends of FSH Research.

Dec 17, 2022
New Publication from Grant Recipient: Professor Zammit at King's College

Nov 14, 2022
Here's YOUR chance to attend a Seahawks game and support FSHD research at the same time!


Oct 28, 2022
Final report of year one.

Oct 16, 2022
Friends of FSH Research is calling for grant proposals now for final submission by the end of January 2023 with funding in March 2023.

Oct 11, 2022
Final update by Dr. Bosnakovski.

Oct 4, 2022
The mission of Friends of FSH Research is to accelerate research that will help find a treatment or cure for FSH muscular dystrophy. This strategy sometimes requires us to fund unique, novel and potentially risky research pilot projects.

Aug 23, 2022
FSHD Clinical Trial Research Network Quarterly Newsletter - Summer 2022

Aug 23, 2022
CMS has accepted a formal request to consider both the benefit category and coverage for seat elevation systems and standing systems.

Aug 4, 2022
Dr. Sanchez provides a final update on his novel tongue EIM assessment device.

Aug 4, 2022
Final udpate from Dr Guo on the generation of a craniofacial muscle model of FSHD from iPSCs.

Aug 4, 2022
Dr. Ozes provides a brief update on progress in testing quite novel DUX4 inhibitors.


May 13, 2022
Final report from Dr. Tapscott on his multi-year grant program.

May 8, 2022
Dr. Jagannathan provides a final research report.

May 5, 2022
Final report from Dr. Rajanikanth Vangipurapu.

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