Friends of FSH Research (Friends) is a Seattle-based non-profit whose mission is to accelerate the discoveries leading to a treatment or cure for FSH Muscular Dystrophy (FSHD). The organization has funded over $3 million towards scientific research since 2005 and has helped spearhead many of the major advances in the field. On February 29 – March 1, 2016, Friends held an invitation-only, International Research Summit to identify priority funding areas to accelerate the development of effective therapies for FSH muscular dystrophy (FSHD). The sessions were structured to gather input from academic and clinical researchers, industry personnel, regulators, and other foundations about how best to remove bottlenecks that can slow translation of recent research advances into therapeutic benefit for patients.
See Summit Report