All in for a Cure

Casino Royale

Due to overwhelming response please contact us for tickets: .
Donations always accepted and appreciated.

Feb 1, 2025 - 5pm

Hyatt Regency Bellevue
Evergreen Ballroom

Cocktail Reception & Silent Auction
followed by
Live Auction, Dinner & Entertainment

Featured wines from Elevation Cellars

 

Accelerating Research Since 2004

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

Latest News
#
Update: TF-Scan Pilot Study
Dec 10, 2024
Summary of the results of the Talus pilot project and their potential impact.
#
Behind the Scenes - Tapscott Lab
Nov 18, 2024
Behind the scenes at the Tapscott Lab at the Fred Hutchinson Cancer Center in Seattle.
#
Update: Uncovering the genetic drivers and suppressors of DUX4 in FSHD
Nov 15, 2024
Final grant report.
#
Report: The role of macrophages in Facioscapulohumeral muscular dystrophy
Nov 8, 2024
Dr. Nunes' initial project report.
#
Report: Mapping Facioscapulohumeral muscular dystrophy through single nuclei RNA sequencing
Nov 6, 2024
Initial progress report.
#
Report: Molecular Markers of FSHD
Nov 2, 2024
The mid-year progress report for Dr. Stephen Tapscott’s project.
facebookLinkedInpinterestinstagram

Over $8.3 million
funded to date,
attracting millions more
to FSHD research

 

Friends is proud to help support free FSHD testing for individuals at
myfshd.org

 

Current FSHD Studies Worldwide

See listings at:
ClinicalTrials.gov
Please consider participating.

 

"Hopefully one day FSHD will be stopped in its tracks. I know that there is still a long road ahead, with many milestones to pass but the journey isn’t quite so scary knowing that I am not alone and that there are those willing to keep pushing ahead, guiding the way until we find the key to unlock that final door."

- T. Pilato

 

Our vision: One day the diagnosis of FSH Muscular Dystrophy will be followed by "...there is a treatment."