FSH January 26th Auction
FiSHing for a Cure
with HeART
New Call for Research Proposals
Terry Colella

Terry Collela, President of Friends makes a new call for research.

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Nature Journals Aim to Improve Reproducibility

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Friends considers efforts to reduce accidental bias and promote both transparency of data and reproducibility to be of utmost importance in translating FSH research from the lab to the clinic, which is why our grant process specifically addresses this issue.

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FSH Mouse Model Expresses DUX4

Stephen Tapscott & Silvère van der Maarel publish initial findings on a new mouse model for FSHD1.

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FSH Most Common Form of Muscular Dystrophy in France

French language article on another antioxidant study makes the interesting claim that FSH is now the most common form of MD in France.

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FSH, l’autre myopathie
FSH, l’autre myopathie

French language exerpts from a March-April exhibition on FSH in Paris. Note that the presentation may not function unless using Google Chrome.

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Corrected stem cells create functional muscle
Michael Kyba PhD

Michael Kyba helps show that genetically corrected iPS cells grow muscle.

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MD CARE Act of 2013

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Act reauthorization.

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Preventing DUX4 Activation and Apoptosis in FSHD Myotubes
Gregory J Block

New 2-year grant awarded to Gregory J Block PhD.

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FSH Scholar Report
Barbara D Page PhD

Barbara D Page provides a final report on her FSH Research Scholar grant funded by Friends of FSH Research.

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Majority vs Minority
Melanie Ehrlich PhD

Melanie Ehrlich investigates two opposing models, Majority Rules and Minority Rules, in her paper Deciphering transcription dysregulation in FSH muscular dystrophy.

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January 26

2013

What We Do

Directly support FSH research through grants made possible largely through your participation in our annual auction. The all-volunteer staff spend countless hours to create a single fun and exciting evening for a very serious cause: Finding the cause and cure for FSH Muscular Dystrophy.

Only because of funding from individuals through organizations like Friends of FSH Research has much progress been made to determine what specific genetic changes are actually causing the disease. Read more About Us. Read also about the many ways you too can contribute.

Thanks to Ann & Nancy Wilson of HEART
for providing the special
Gala Centerpieces
Fishing for a Cure with heART



UW Medicine's Dr. Daniel Miller Talks About FSH
See Also: Challenges in unraveling FSHD
You can make a difference
GoodDiningEat at a GoodDining Restaurant and earn up to 6% for Friends of FSH Research.
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Connecting people with researchersIf you are a patient, reigster with the National Registry for MD and FSH Patients in order to participate in research, and encourage more research in this area.
Linda Geng, one of several researchers at the Fred Hutchinson Cancer Research Center funded by Friends of FSH Research, provides a brief overview of a recent project.
DUX4 Primer

An 11½-minute podcast interview by MDA with Stephen Tapscott explores recent findings funded by Friends of FSH Research about the molecular basis of FSHD (see Quest article). Requires MP3 audio support.

Play podcast:
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Thank You For Helping
GiveBIG 2013

On May 15, The Seattle Foundation once again sponsored its Give BIG day. Matching funds were contributed by various organizations, and the more you gave on May 15, the larger a share was directed toward FSHD research. We raise $4352 in a single day for research.

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How can I help raise $100 this month?

share Goodshop To-Go
with 10 friends

each friend raises $10
through Goodshop