friends of FSH Research

Funding Research for
FSH Muscular Dystrophy Dots

Over 10 Years of Creating Hope

Laser Focused

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>


Latest News

Friends honored at University of Washington Dean's Circle

— May 26, 2015

Friends of FSH Research was given honorable mention at the University of Washington Dean's Circle this evening.

Research Funding: Genea Biocells to develop next generation screening platform for FSHD

— May 4, 2015

Genea Biocells will develop a validated tool for the FSHD community - and we'll test important hypotheses along the…

Research Funding: Dr. Bloch wants to get to the root of FSHD

— May 3, 2015

Friends of FSH Research and FSHD Canada fund investigators at the University of Maryland.

Participate in FSHD Research

— April 20, 2015

Researchers at the University of Washington and Seattle Children's Hospital are seeking volunteers for a study on…

Friends of FSH Research approves new strategic initiative.

— April 10, 2015

The board of Friends of FSH Research has approved a new strategic initiative to advance our research efforts.

Research Update: Dr. Daniel Miller searches the blood for signs of FSHD.

— March 28, 2015

At the MDA scientific conference held in Washington D.C. in March, Dr. Daniel Miller presented his unpublished data…


Over $2.5 million

funded to date


Attracted to research

Check Out Our Impact >>

"Hopefully one day FSHD will be stopped in its tracks. I know that there is still a long road ahead, with many milestones to pass but the journey isn’t quite so scary knowing that I am not alone and that there are those willing to keep pushing ahead, guiding the way until we find the key to unlock that final door."

- T. Pilato