friends of FSH Research

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Over 10 Years of Creating Hope

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

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Over $3.2 million

funded to date

$15,000,000

Attracted to research

Check Out Your Impact >>

"Hopefully one day FSHD will be stopped in its tracks. I know that there is still a long road ahead, with many milestones to pass but the journey isn’t quite so scary knowing that I am not alone and that there are those willing to keep pushing ahead, guiding the way until we find the key to unlock that final door."

- T. Pilato


Our vision: One day the diagnosis of FSH Muscular Dystrophy will be followed by "...there is a treatment."


Latest News

World FSHD Day Proclamation

— June 20, 2017

Washington State Governor Jay Inslee proclaims June 20th "FSHD Awareness Day."

Friends of FSH Research recognizes local researchers

— June 8, 2017

Since 2004 efforts have been made locally to infuse the Seattle research community with funds for FSHD research.

Progress Report: Histochemical and morphometric analysis of FSHD biceps

— June 8, 2017

Update from Dr. Wagner regarding her study ofthe histopathological features of FSHD affected muscle.

Progress Report: Clinical Study using MRI to measure immune response

— May 30, 2017

Dr. Wang provides a progress report on his clinical study.

Progress Report: Optimizing the Utility of the National Registry for FSHD Research and Trial Recruitment

— May 30, 2017

Progress report from Dr. Tawil on making the National Registry more useful for research by providing genetic…

 
 

Ask the Expert

Therapy Q&A

by Amanda Rickard

Interview of Dr. Joel Chamberlain regarding her lab's work on therapy development.
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Chris Carrino

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Chris pushes past his time and physical constraints to run a foundation while continuing in his role as announcer for the Brooklyn Nets.
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