friends of FSH Research

Funding Research for
FSH Muscular Dystrophy Dots




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Over 10 Years of Creating Hope

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>


A Night in Havana


The Immunology Project

We are excited to introduce our Immunology Project. Our goal is to raise $50,000 or more by the end of the year, 10% of which will benefit Seattle Children's Research Institute. Learn More>>

Seattle Children'sSeattle Children's®

10% of the proceeds from this campaign
will support research at Children's

Upcoming Events

We'll Rumba for Research

— January 23rd, 2016

Our 12th annual FiSHing for a Cure Auction and Gala will have the theme of "A Night in Havana". Don't forget your passports!

Latest News

Research Funding: Joel Chamberlain looks for DUX4 in humans

— November 4, 2015

Dr. Chamberlain will be investigating the how DUX4 expression in humans relates to disease pathology.

Dr. Block to Present at International FSH Research Conference

— October 3, 2015

Dr. Block will present a short talk entitled "Global Initiatives to Accelerate FSH Research" to introduce a panel…

Research Publication: Catching DUX4 red (or green)-handed.

— September 2, 2015

Researchers at the University of Washington follow DUX4 - the real DUX4 - that's cool.

Research Publication: A glimpse into SMCHD1 function

— August 12, 2015

Researchers in Australia have carried out some important experiments towards our understanding of the FSHD2-causing…

Research funding: a collaborative effort to silence DUX4

— July 11, 2015

An industry/academic collaboration to test a lead compound in a potentially robust animal model of FSHD.

Silencing DUX4 at the source

— June 27, 2015

A new study suggests it may be possible to re-silence the DUX4-containing DNA array.


Over $2.5 million

funded to date


Attracted to research

Check Out Our Impact >>

"Hopefully one day FSHD will be stopped in its tracks. I know that there is still a long road ahead, with many milestones to pass but the journey isn’t quite so scary knowing that I am not alone and that there are those willing to keep pushing ahead, guiding the way until we find the key to unlock that final door."

- T. Pilato