FSHD January 24th Auction
The Roaring Twenties
1 Million Euro for FSHD
Silvère van der Maarel

The Pricess Beatrix Fund awards a €1 million prize to Silvère van der Maarel to further his groundbreaking FSHD research.

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Kyba's Latest Mouse Model
Gregory Block

Gregory Block walks through Dr. Michael Kyba's latest mouse model of FSHD.

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Population-based incidence and prevalence of FSHD

With a rate of at least 12/100,000, which may well underestimate the total population, FSHD is one of the most prevalent neuromuscular disorders.

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The odd truths about FSH Muscular Dystrophy

Good commentary in an article by Katherine Camarta, spouse of Neil Camarta, founder & CEO of FSHD Canada.

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Two Newly Funded Projects
Neil Camarta, FSHD Canada Foundation

Friends of FSH Research and FSHD Canada fund two new projects.

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2014 ASCGT Conference
Amanda Rickard BSc

Amanda Rickard provides a brief review of the 2014 conference.

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Wellstone Grant Award

The University of Washington receives four years of funding for a Paul D. Wellstone Muscular Dystrophy Cooperative Research Center.

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DUX4 Expression Major FSHD Signature
Stephen Tapscott MD PhD

DUX4 target gene expression is the major molecular signature in FSHD muscle together with a gene expression signature consistent with an immune cell infiltration.

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Seattle Research Presentation
FSH Society

Friends of FSH Research & FSH Society host presentations May 17th at the Fred Hutchinson Cancer Research Center in Seattle.

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Amazon Smile Giving Away Free Money
Amazon Smile

Friends of FSH Research recently received its first check from Amazon.com.

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Current Research Presentations
Jeff Chamberlain PhD

Jeff Chamberlain & Seth Friedman will be presenting some of their latest research at the Fred Hutchinson Center. The presentations will also be live-streamed.

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What We Do

Directly support FSHD research through grants made possible largely through your participation in our annual auction. The all-volunteer staff spend countless hours to create a single fun and exciting evening for a very serious cause: Finding the cause and cure for FSH Muscular Dystrophy.

Only because of funding from individuals through organizations like Friends of FSH Research has much progress been made to determine what specific genetic changes are actually causing the disease. Read more About Us. Read also about the many ways you too can contribute in finding a cure.

Thanks to Ann & Nancy Wilson of HEART
for providing the special
Gala Centerpieces
Fishing for a Cure with heART
10 Years of Creating Hope
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UW Medicine's Dr. Daniel Miller Talks About FSHD
See Also: Challenges in unraveling FSHD

Our Donors

Please take a moment to view our generous donors.

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P2 Nutrition

20% of your purchase of P2Life Performance Nutrition products goes towards supporting FSHD research.
"The body can achieve amazing things when you feed it correctly. P2Life focuses on providing your body the nutrition it was meant to have."
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Other Ways To Share
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You can make a difference
Connecting people with researchers

If you are a patient, register with the National Registry for MD and FSHD Patients in order to participate in research, and encourage more research in this area.