May 30th, 2015
The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>
Genea Biocells will develop a validated tool for the FSHD community - and we'll test important hypotheses along the…
Friends of FSH Research and FSHD Canada fund investigators at the University of Maryland.
Researchers at the University of Washington and Seattle Children's Hospital are seeking volunteers for a study on…
The board of Friends of FSH Research has approved a new strategic initiative to advance our research efforts.
At the MDA scientific conference held in Washington D.C. in March, Dr. Daniel Miller presented his unpublished data…
FSHD was a hot topic at the MDA scientific conference in Washington D.C.
"Hopefully one day FSHD will be stopped in its tracks. I know that there is still a long road ahead, with many milestones to pass but the journey isn’t quite so scary knowing that I am not alone and that there are those willing to keep pushing ahead, guiding the way until we find the key to unlock that final door."
- T. Pilato