friends of FSH Research

Funding Research for
FSH Muscular Dystrophy Dots

Over 10 Years of Creating Hope

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

Give Big 2015


Upcoming Events

Cruising for a Cure

— April 23rd, 2015

Our friends in Vancouver are throwing an amazing fundraiser to raise money for research.

Latest News

Friends of FSH Research approves new strategic initiative.

— April 10, 2015

The board of Friends of FSH Research has approved a new strategic initiative to advance our research efforts.

Research Update: Dr. Daniel Miller searches the blood for signs of FSHD.

— March 28, 2015

At the MDA scientific conference held in Washington D.C. in March, Dr. Daniel Miller presented his unpublished data…

FSHD research progress highlighted at the Muscular Dystrophy Association Scientific Conference.

— March 17, 2015

FSHD was a hot topic at the MDA scientific conference in Washington D.C.

DUX4: No Nonsense

— February 6, 2015

It's tough to put our finger on exactly why it's bad to have DUX4 around. A new paper sheds light.

Research Update: Tapscott Lab

— February 4, 2015

The Tapscott lab is entering the final year of a four-year grant. Let's see how they are doing.

Oh what a night!!!

— January 26, 2015

Friends of FSH Research raises a record $270,000 at annual auction and gala.


Over $2.5 million

funded to date


Attracted to research

Check Out Our Impact >>

"Hopefully one day FSHD will be stopped in its tracks. I know that there is still a long road ahead, with many milestones to pass but the journey isn’t quite so scary knowing that I am not alone and that there are those willing to keep pushing ahead, guiding the way until we find the key to unlock that final door."

- T. Pilato