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Progress Update: DUX4 mRNA silencing using CRISPR-Cas13
Apr 20, 2021
Dr. Afrooz Rashnonejad provides a final update on her project.
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Progress Update: Molecular Mechanism of p38 Kinase-mediated inhibition of DUX4 Gene in FSHD
Apr 20, 2021
Dr. Rajanikanth Vangipurapu provides an update on the first year of progress.
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Washington Gives 2021
Apr 19, 2021
Give BIG 2021
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Progress Update: DUX4 mRNA silencing using RNA editing
Apr 18, 2021
Dr. Harper provides an update on his project.
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Progress Update: Base editing of DUX4 somatic polyadenylation signal
Apr 18, 2021
Darina Šikrová provides a final update on her project.
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Progress Update: Development of a Novel Tool to Measure Orofacial Strength in FSDH
Apr 17, 2021
Progress update from Dr. Johnstone regarding termination of the project.
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Progress Update: Flex fund for clinical study participant reimbursement
Mar 16, 2021
Dr. Kyba provides an update on his clinical study reimbursement expenses.
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Progress Update: DUX4-induced mechanisms contributing to FSHD pathogenesis
Mar 16, 2021
Dr. Hamm provides an update on the molecular mechanisms that occur in FSHD.
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Progress Update: Deciphering the role of aberrant protein synthesis in FSHD
Mar 6, 2021
Dr Jagannathan provides an update on her lab's research.
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Progress Update: Motor Outcomes to Validate Evaluations in FSHD
Mar 6, 2021
Dr. Statland provides an update to the MOVE FSHD study.
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2021 FSHD Research Update Meeting
Mar 2, 2021
Friends of FSH Research hosted our annual FSHD Research Update Meeting on Saturday February 27, 2021. Recording now available.
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2021 FSHD Research Update Meeting
Feb 23, 2021
Friends of FSH Research is excited to host our annual FSHD Research Update Meeting. Logo T-Shirt now available.
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Progress Update: Development of novel DUX4-targeted miR-675-based therapies for FSHD
Feb 1, 2021
Dr. Saad provides a 6-month update on his work.
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Progress Update: Antisense Oligonucleotide – Antibody Conjugates to Treat FSHD
Dec 1, 2020
Dr. Marusak provides a one-year update on their progress.
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Progress Update: Regulation and activity of the DUX4 transcription factor
Nov 21, 2020
Dr. Tapscott and provides an update on his multi-year grant.
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Voice of the Patient Report
Nov 15, 2020
In June 2020 Friends of FSH Research partnered with the FSHD Society in an externally led patient-focused drug development meeting. The report is now available.
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Progress Update: Base editing of DUX4 somatic polyadenylation signal
Nov 15, 2020
Dr. Šikrová provides an update on grant progress.
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21 dresses and a little hope
Nov 9, 2020
We are living in some pretty challenging times right now. COVID has made everyone rethink everything we do including the things we take for granted every day.
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Call For Grant Proposals
Nov 1, 2020
A call for research proposals.
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Progress Update: DUX4 mRNA silencing using CRISPR-Cas13
Oct 25, 2020
Dr. Rashnonejad provides an update on a potential therapeutic.