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Oct 14, 2020
Dr. Wang provides an update on the various studies supported by Friends at the UW.
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Oct 6, 2020
Dr. Lek provides an update on progress establishing a pipeline for testing the therapeutic potential of the drugs to reduce DUX4 toxicity, starting with everolimus.
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Sep 28, 2020
Win a special UW mask at the Mask-r-Aid Ball.
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Sep 26, 2020
Researchers at the University of Washington are investigating new instruments to measure the strength of the oral muscles in FSHD.
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Sep 25, 2020
Researchers at the University of Washington are investigating new instruments to measure the strength of the oral muscles in FSHD.
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Sep 24, 2020
Board member Dr. Premi Haynes interviews grant recipient Dr. Sujatha Jagannathan.
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Sep 15, 2020
Dr. Peter Jones provides a 6 month update on validating an affordable epigenetic diagnostic. The validation could be helped by more volunteers.
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Sep 14, 2020
Dr. Rabi Tawil provides an update on the expansion of the ReSolve Study to include two European Sites.
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Sep 10, 2020
Dr. Vangipurapu from the Sverdrup Lab provides a progress update.
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Aug 8, 2020
Michelle Li of KING5 on Mask-r-Aid Ball.
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Aug 6, 2020
Dr. Jagannathan provides an update on her lab's progress so far on aberrant RNA.
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Jul 23, 2020
A grant to Drs. Statland and Tawil in support of a multi-year study.
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Jul 23, 2020
Grant to support the Jones lab in validating a proposed FSHD diagnostic.
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Jul 16, 2020
Dr. Jones explains his lab's work on a low-cost FSHD diagnostic.
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Jun 24, 2020
Do you miss seeing your favorite artists this summer?
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Jun 20, 2020
United for a Cure.
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Jun 19, 2020
Dyne has produced a wonderful "Fireside" video for World FSHD Day.
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Jun 12, 2020
Dr. Hamm provides a final update to her Wellstone Fellowship project.
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Jun 11, 2020
Dr. Tawil provides an update on extended genetic testing for current and new patients in the National Registry.
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Jun 3, 2020
In celebration of World FSHD Day and in support of the upcoming Voice of the Patient Forum, Molly White of Dyne Therapeutics invites anyone living with FSHD to describe what would be a meaningful benefit from a successful therapy.