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Progress Update: Regulation and activity of the DUX4 transcription factor
Nov 24, 2019
The funding provided by Friends of FSH Research and the Carrino Foundation has supported Dr. Amy Campbell, a dedicated professional highly skilled in FSHD research who oversees the completion of high-impact studies on FSHD and provides scientific and technical oversight for graduate students, postdoctoral fellows, and collaborators seeking to initiate and/or advance projects in FSHD.
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Flappers and Fedoras Bootleggers Ball
Nov 17, 2019
Join us at the Annual Auction. Good food, good company, good time.
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CTRN ReSolve FSHD Update
Nov 6, 2019
Clinical Trial Readiness to Solve Barriers to Drug Development in FSHD (ReSolve FSHD).
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Wellstone Research Update 2020
Nov 5, 2019
A discussion on recent research advances at the Hyatt prior to the Annual Auction: Rainier Room @ 1-4pm. RSVP. Agenda posted here as well.
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Progress Update: Understanding the initiation and progression of FSHD-1
Nov 4, 2019
Dr. Pakula provides her final update on this research project.
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Wine Tasting for a Cure
Nov 4, 2019
Wine tasting and hors d'oeuvres at Elevation Winery in Woodinville.RSVP today via evite or email.
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Kendra Gives Back Party
Nov 3, 2019
Enjoy sips, sweets and making your own custom jewelry at the Color Bar. 20% of sales benefit FSHD research.
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Progress Update: In vivo model to validate drugs targeting DUX4 enhancer/promoter activity
Oct 24, 2019
Yosuke Hiramuki provides an update on his novel mouse model.
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Progress Update: Base editing of DUX4 somatic polyadenylation signal
Oct 24, 2019
Darina Šikrová provides a progress update of her work on using a novel genome editing tool to target DUX4.
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Progress Update: Defining the role of PTM on FSHD protein DUX4
Sep 29, 2019
Final progress update.
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Fulcrum Announces Initiation of Phase 2b Clinical Trial of Losmapimod
Aug 19, 2019
Fulcrum Therapeutics Announces Initiation of ReDUX4, a Phase 2b Clinical Trial of Losmapimod for FSHD.
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Progress Update: Optimizing the Utility of the National Registry for FSHD Research and Trial Recruitment
Aug 5, 2019
Dr. Tawil provides an update on year three of his project to get genetic testing performed for those in the registry who do not have it, and thus create a larger viable pool for upcoming clinical trials.
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Progress Update: Young Investigator Travel Grants
Aug 2, 2019
Travel reports from recipients of travel grants for the 2019 FSH Society International Research Congress.
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Progress Update: Aberrant Protein Synthesis
Aug 1, 2019
Sujatha Jagannathan provides a brief final summary of work on her research.
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Progress Update: Omics Approach to Identifying Biomarkers
Aug 1, 2019
Yi-Wen Chen provides a final summary of her research activities.
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Progress Update: CTRN International Sites
Aug 1, 2019
Dr. Tawil provides a brief update on the two CTRN European sites funded.
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Interview With Dr. Danielle Hamm
Jul 26, 2019
Recipient of the FSH Fellowship award.
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CTRN ReSolve FSHD Update
Jul 19, 2019
Clinical Trial Readiness to Solve Barriers to Drug Development in FSHD (ReSolve FSHD).
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DUX4 suppresses MHC Class I
Jul 18, 2019
DUX4 suppresses MHC Class I to promote cancer immune evasion and resistance to checkpoint blockade.
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2019 Request for Research Proposals
Jun 17, 2019
Friends of FSH Research is pleased to announce our next request for grant proposals to help the advancement of FSHD research.