friends of FSH Research


World FSHD Day Proclamation

— June 20, 2017

Washington State Governor Jay Inslee proclaims June 20th "FSHD Awareness Day."

Friends of FSH Research recognizes local researchers

— June 8, 2017

Since 2004 efforts have been made locally to infuse the Seattle research community with funds for FSHD research.

Progress Report: Histochemical and morphometric analysis of FSHD biceps

— June 8, 2017

Update from Dr. Wagner regarding her study ofthe histopathological features of FSHD affected muscle.

Progress Report: Clinical Study using MRI to measure immune response

— May 30, 2017

Dr. Wang provides a progress report on his clinical study.

Progress Report: Optimizing the Utility of the National Registry for FSHD Research and Trial Recruitment

— May 30, 2017

Progress report from Dr. Tawil on making the National Registry more useful for research by providing genetic testing.