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FSHD advocate and para-athlete visits “Good Morning America”
Dec 23, 2014
Carlos Romero paid a visit to the folks at Good Morning America on Tuesday Morning.
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Understanding FSHD2
Dec 19, 2014
Just in case FSH muscular dystrophy (FSHD) wasn’t confusing enough, now there’s a lot of talk about FSHD2. Let’s take some time to make sure we’re all on the same page and understand what’s going on.
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The Roaring 20s 11th Annual Gala and Auction
Dec 10, 2014
The event of the year is fast approaching! Get your tickets today.
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FSHD Research Progress Workshop
Dec 10, 2014
The Friday afternoon before our annual auction we'll be hosting a research progress workshop for researchers, patients, and donors. All are welcome. Please RSVP.
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University of Waterloo Student Describes FSHD as a Disease of Losses
Nov 19, 2014
University of Waterloo senior Schuyler Schmidt researched FSHD for her class, and had never heard about the disease before.
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Drinking Beer for Research!
Nov 16, 2014
The Watershed Pub & Kitchen and Black Raven beer are teaming up to raise money for Friends of FSH Research.
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Why is FSHD so variable?
Oct 30, 2014
Spoiler alert: it's because of epigenetics.
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Knitting for a Cure
Oct 29, 2014
15% of Sales at The Tea Cozy will be donated to Friends of FSH Research.
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Life Sciences Research Weekend
Oct 22, 2014
Join Friends of FSH Research at the Pacific Science Center where we will be learning about how muscles work!
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Extracting the Big Picture from the 2014 International FSHD Meeting
Oct 21, 2014
This past weekend, the International FSHD Research Consortium was held in San Diego alongside the American Society for Human Genetics Annual Conference.
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We're Moving Muscles for Research!
Oct 7, 2014
Join Friends of FSH Research and Mariel Colella at the 2014 Amica Insurance Seattle Marathon
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I Don't Like the Word Facioscapulohumeral
Sep 22, 2014
FSH Muscular Dystrophy has always suffered from an obscenely long and latin name. Learn about how we're demystifying the name, the disease, and the path to treatment.
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Friends of FSH Research Hires Scientific Development Director
Sep 17, 2014
Friends of FSH Research has hired Dr. Gregory Block to bridge the gap between fundraising and science.
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Friends of FSH Research 2014/15 Case Statement
Sep 16, 2014
Read about Friends of FSH Research new strategic direction.
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One million Euro for FSHD Research Pioneer
Sep 13, 2014
Silvère van der Maarel of Leiden University was awarded €1 million from the Princess Beatrix Fund for his pioneering work in FSHD research.
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Walking through Dr. Michael Kyba’s latest mouse model of FSHD
Sep 2, 2014
An in-depth analysis of the latest publication on a mouse model for FSHD. What does it mean? Why do we need a mouse model?
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Progress Update: Identification of small RNAs generated from the D4Z4 array by deep high-throughput sequencing
Aug 31, 2014
Drs. Filippova and Miller present their final results from the study.
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Progress Update: Targeting DUX4 in the 4qD4Z4 repeat array in FSHD
Jul 31, 2014
Jong Won Lim, postdoctoral fellow, provides an update on his fellowship.
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Friends of FSH Research and FSHD Canada Fund Two New Projects
Jul 16, 2014
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Paul D. Wellstone Muscular Dystrophy Cooperative Research Center Grant
Jun 3, 2014
Today the University of Washington announced that it received four years of funding for a Paul D. Wellstone Muscular Dystrophy Cooperative Research Center from the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), a branch of the National Institutes of Health (NIH).