Aug 23, 2022
FSHD Clinical Trial Research Network Quarterly Newsletter - Summer 2022
Aug 23, 2022
CMS has accepted a formal request to consider both the benefit category and coverage for seat elevation systems and standing systems.
Aug 4, 2022
Dr. Sanchez provides a final update on his novel tongue EIM assessment device.
Aug 4, 2022
Final udpate from Dr Guo on the generation of a craniofacial muscle model of FSHD from iPSCs.
Aug 4, 2022
Dr. Ozes provides a brief update on progress in testing quite novel DUX4 inhibitors.
May 13, 2022
Final report from Dr. Tapscott on his multi-year grant program.
May 8, 2022
Dr. Jagannathan provides a final research report.
May 5, 2022
Final report from Dr. Rajanikanth Vangipurapu.
Mar 5, 2022
Rampathon 2022 - Building wheelchair access ramps in King and Snohomish Counties for free.
Mar 3, 2022
Fulcrum Therapeutics, Inc. announced its plans to initiate REACH, a Phase 3 clinical trial of losmapimod in people with FSHD, in the second quarter of 2022.
Mar 1, 2022
Dr. Hiramuki provides a final project update.
Feb 25, 2022
Buy spring flowers for your garden and support FSHD research, where 50% of proceeds come directly back to our organization.
Feb 7, 2022
The Wedgwood Art Festival is back as an in-person, 2-day event, supporting and celebrating arts in the Wedgwood community with a focus on NW artists and craftspeople.
Feb 7, 2022
Dr. Heher provides an update on his innovative mitochondria-targeted antioxidants research.
Jan 25, 2022
Dr. Statland provides an 18 month update on the current state of CTRN.
Dec 8, 2021
Dr. Bosnakovski provides an initial update on his project.
Connect with us on social media