Jul 14, 2016
Implications for FSHD and therapeutic developments
Jul 6, 2016
NCATS Leading Crucial, Collaborate Efforts to Advance Rare Diseases Research.
Jun 20, 2016
Seattle Mayor Ed Murray and US Senator Maria Cantwell pay tribute to the first ever World FSHD Awareness Day.
Jun 17, 2016
Genea Biocells is donating to Friends for every picture of Myotube Mike tagged as #MyotubeMike4FSHD on Facebook, Twitter or Instagram.
Jun 17, 2016
Sheila had the pleasure of meeting with Daniel G. Miller, Geneticist at Seattle Children’s Hospital, and Associate Professor at the University of Washington. Dr. Miller and colleagues from the University of Rochester, the University of Washington, and Seattle Children’s Hospital recently published a cross sectional study of two independent groups of people with FSHD, and identified serum biomarkers. The landmark study was published in the journal Neuromuscular Disorders.
Jun 16, 2016
We are re-issuing our 2016 general call for research proposals. We are accepting any proposal that support a path toward a treatment or cure for FSH muscular dystrophy.
May 23, 2016
Report of FSHD Summit held in Portland, Oregon, February 29 to March 1 of 2016.
May 14, 2016
What should we use to track the benefits of a treatment in clinical trials for FSHD?
Apr 29, 2016
The European Neuromuscular Centre (ENMC) has awarded a grant to discuss expanding the core set of data that is collected within those registries.
Apr 20, 2016
Put a phone reminder and mark your calendars for the Seattle GiveBIG where every donation is stretched further by matching dollars.
Apr 15, 2016
Patient, donor, and board member George Shaw asked key questions about what the Summit was all about.
Apr 8, 2016
aTyr pharma has encouraging news regarding a possible treatment for FSHD using a novel protein-based biologic drug.
Mar 24, 2016
Dr. Robert Bloch provides an update on his research into xenografting.
Feb 23, 2016
FSHD clinical research project needs patients to complete study
Feb 15, 2016
Grant for curriculum development and online resources for education by Robert Kao
Feb 1, 2016
Treat yourself and your garden friends to a day of garden delights at the lovely Lynnwood Convention Center.
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