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![#](https://www.fshfriends.org/application/files/6815/2685/7574/ENMC_logo.png)
Apr 29, 2016, 3:56 PM
The European Neuromuscular Centre (ENMC) has awarded a grant to discuss expanding the core set of data that is collected within those registries.
![#](https://www.fshfriends.org/application/files/5315/2685/6918/GiveBIG_logo.png)
Apr 20, 2016, 3:46 PM
Put a phone reminder and mark your calendars for the Seattle GiveBIG where every donation is stretched further by matching dollars.
![#](https://www.fshfriends.org/application/files/9015/2685/1206/Leap_Year_Summit_Agenda.png)
Apr 15, 2016, 2:53 PM
Patient, donor, and board member George Shaw asked key questions about what the Summit was all about.
![#](https://www.fshfriends.org/application/files/2715/2685/3048/aTyr_Pharma_logo.png)
Apr 8, 2016, 2:39 PM
aTyr pharma has encouraging news regarding a possible treatment for FSHD using a novel protein-based biologic drug.
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