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![#](https://www.fshfriends.org/application/files/3515/2995/8971/Fabiola_Maria_Bertinotti.png)
Jun 25, 2018, 1:30 PM
Fabiola Bertinotti provides an update on Jaya, who spoke at the 2018 Annual Auction.
![#](https://www.fshfriends.org/application/files/5415/2951/6573/Dave_Lukas.png)
Jun 20, 2018, 3:00 AM
Dave Lukas describes his transformation into an advocate for those with FSHD and participation in clinical trials.
![#](https://www.fshfriends.org/application/files/1015/2935/8564/2018_International_Research_Congress__Research_Planning_Meeting.png)
Jun 18, 2018, 9:59 AM
Summary of progress and presentations at the June 8-9 conference in Las Vegas.
![#](https://www.fshfriends.org/application/files/9815/2563/9935/Premi_Haynes.png)
Jun 15, 2018, 1:44 AM
Grant recipient Premi Haynes discusses her work and interest in FSHD.
![#](https://www.fshfriends.org/application/files/6815/2685/9495/World_FSHD_Day.png)
![#](https://www.fshfriends.org/application/files/4815/2657/1618/Genea_Biocells.png)
Jun 1, 2018, 7:48 AM
Genea Biocells announced that it has been granted Orphan Drug Designation by the U.S. Food and Drug Administration (FDA) for its therapeutic candidate, GBC0905,
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