Search Results
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2022 FSHD Research Update Meeting - Video
Mar 23, 2022, 6:30 PM
Video of 2022 Research Update Meeting.
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2021 FSHD Research Update Meeting
Mar 2, 2021, 10:59 AM
Friends of FSH Research hosted our annual FSHD Research Update Meeting on Saturday February 27, 2021. Recording now available.
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2018 International Research Congress and Research Planning Meeting
Jun 18, 2018, 9:59 AM
Summary of progress and presentations at the June 8-9 conference in Las Vegas.
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From Passive to Active
Mar 19, 2018, 10:08 PM
ENMC 25th anniversary summit - The Patient Role in Shared Decision Making.
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Highlights of 2017 MDA Conference
May 18, 2017, 6:01 PM
Genea Biocells scientists presented work from four disease modeling projects.
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ENMC Workshop on FSHD Global Registries
Dec 1, 2016, 11:51 AM
Lay summary for the ENMC Workshop.
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FSH Summit Report 2016
May 23, 2016, 4:44 PM
Report of FSHD Summit held in Portland, Oregon, February 29 to March 1 of 2016.
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Grant Awarded to Expand FSHD Patient Registries
Apr 29, 2016, 3:56 PM
The European Neuromuscular Centre (ENMC) has awarded a grant to discuss expanding the core set of data that is collected within those registries.
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Friends of FSH Research Summit Q&A
Apr 15, 2016, 2:53 PM
Patient, donor, and board member George Shaw asked key questions about what the Summit was all about.
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FSHD research progress highlighted at the Muscular Dystrophy Association Scientific Conference
Mar 17, 2015, 2:58 PM
FSHD was a hot topic at the MDA scientific conference in Washington D.C.
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September 2010 FSH Research Meeting
Sep 16, 2010, 3:08 PM
This brought together the various labs which have been collaborating in an effort to push ahead on FSH research through an open exchange of unpublished research.