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Highlights of 2017 MDA Conference
May 18, 2017
Genea Biocells scientists presented work from four disease modeling projects.
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You Gave BIG
May 11, 2017
Thanks to you, we exceeded our Give BIG goal.
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GiveBIG is today!
May 10, 2017
GiveBIG campaign sponsored by the Seattle Foundation.
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Coast 2 Coast 4 FSHD
May 1, 2017
4200 miles in 54 days to raise funds for research.
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Ride Kick-Off Celebration
May 1, 2017
Meet all the cyclists to cheer them on as they depart for their long journey.
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Coast 2 Coast Pre-Ride Meet & Greet
May 1, 2017
Meet Chris Carrino, Frank Carbone, and his team of cyclists at Postdoc Brewing.
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World FSHD Day Awards Reception
May 1, 2017
Join us as we recognize the researchers and their teams.
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Chris Carrino
May 1, 2017
Chris pushes past his time and physical constraints to run a foundation while continuing in his role as announcer for the Brooklyn Nets.
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Wedgwood Art Festival
May 1, 2017
Visit us and the artists who support our annual auction. Volunteers needed!
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GiveBIG
May 1, 2017
GiveBIG campaign sponsored by the Seattle Foundation.
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Therapy Q&A
May 1, 2017
Interview of Dr. Joel Chamberlain regarding her lab's work on therapy development.
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Kirkland couple raises $3.2M for FSHD
Apr 17, 2017
Kirkland Reporter article.
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Progress Update: Structural studies of DUX4-DNA interaction
Mar 24, 2017
Hideki Aihara PhD provides an update on his research into the structure of the Dux4 homeodomains in complex with DNA.
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Where the Funding Goes
Mar 24, 2017
Amanda provides brief visuals on where your funding has gone within the USA and Worldwide.
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Potential use of BET inhibitors for FSHD
Mar 11, 2017
Q&A by Fran Sverdrup, a Research Fellow at Center for World Health and Medicine.
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Progress in Understanding FSHD Molecular Pathology
Mar 11, 2017
Review of a newly published paper from Davide Gabellini's group.
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Medical Equipment, Access Solutions and Respiratory Therapy
Feb 28, 2017
Howard Chabner updates 2013 memo on recommendations for various types of medical and mobility equipment.
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Research Opportunity
Feb 9, 2017
The University of Washington is seeking individuals to participate in a research study aimed at identifying biomarkers of FSHD.
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Meet Our Development Director
Feb 8, 2017
Bonnie DeCaro-Monahan joins Friends of FSH Research.
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AccessMap Routing Tool
Feb 8, 2017
A tool under development at the UW to provide routing information for someone with limited mobility.